*Early November: We were able to go visit Kaybri and Paxton's best buddies, Kinley and Kyle(their cousins in American Fork). Kaybri had a seizure within the first 5 minutes of being there, so she was asleep or grouchy for the remaining time we were there. But Paxton and Kyle got to roll around and chase each other for awhile. They are only 1 month apart, and both super cute, chunky boys.
*Thanksgiving: Cory and Dawn's family came to stay with us a few days before Thanksgiving. We had such a good time playing and visiting with them. The day before Thanksgiving we all packed up and went down to Justin's parents for the rest of the week. All of Justin's siblings were there except for his sister. We ate lots of yummy food, played games, did a little bit of black Friday shopping, shot off rockets, and the boys made race tracks to race some cars. It was lots of fun, but also a little bit of a stressful week because we had put Kaybri on a pretty restricted diet a week or two before to try to help her seizures. Of course she didn't understand why she couldn't eat the food everyone else was eating. Dieting during Thanksgiving is not recommended.
*December 3rd-11th: We went and got our Christmas tree for FHE night; it was so pretty and smelled so good. By the time we got it in the tree stand though, the kids were screaming/crying and it was time to go to bed. So we decided we'd decorate it the next night....WRONG! We found on Tuesday that there was a pretty good possibility that Kaybri could get in Wednesday (the 5th) to do a Video EEG, so I spent that night packing and trying to get everything organized for while we would be gone. They did get us in on Wednesday and we were there until the next Tuesday. The doctors wanted Kaybri to have 4-5 seizures while we were there, so they slowly took her off all her medicines. She had a lot of wires glued to her head, and then gauze wrapped all over her head. It looked like she had a major head injury. She was confined to her room the entire time and was supposed to stay in her bed the majority of the time so they could video her. That's a big challenge for a 2 (almost 3) year old. By the end of the week, Kaybri and I were both about to go crazy! She did have 3 seizures and quite a bit of abnormal spikes that showed up on the EEG. The doctors had to give her some medicine through her IV during her last seizure to make her come out of it. So after that, they decided to put her back on her meds and not risk having a seizure they couldn't control. The test should show what part of the brain her seizures start and whether they are focal or generalized, and if they are focal there is a possibility for surgery. We are so grateful that they got us in so quickly, and that the doctors are finally trying to do something besides giving her more drugs.
While we were away, Paxton stayed with Grandpa and Grandma Echols. I think he totally enjoyed having all the attention to himself! They came to visit us in the hospital a couple of times and it made our day! Kaybri and Paxton were both so excited when they saw each other.
*December 11th-Present: We were all SOOO happy to be coming home and to be together again, but that feeling has been overcome with TOTAL SICKNESS! Paxton got sick with the flu on the way home, and it got passed on to Kaybri, and now on to Justin. The kids still are not 100% better, but at least they're not throwing up anymore. Nevertheless, the tree is still not decorated and the majority of the "things to do" before Christmas are not done, but I am still semi-sane and hey, I finally got a chance to update my blog!
11 comments:
Boy, you guys have been through the wringer with that little girl! I hope you guys get a much needed break for Christmas and that some answers can be found for her.
Now you've commented on my blog so we're offically friends and blogging buddies!
Everything that goes on with Kaybri seems so tough! You guys are amazing! Hope you get your tree decorated in time for Christmas!
Hey Cassi - glad to see you've survived the last few weeks. We'll keep your family in our prayers: that the results of the EEG will provide an understanding of Kaybri's condition, that you'll all be in good health, that you'll be able to enjoy the Christmas holidays, and especially that you'll get the job in Safford! :)
That's a bummer that she had to be on a strict diet for Thanksgiving! Is she really just 2 years old? She looks much older than that! How far apart are she and Paxton?
Let us know the status of Justin's job search. I know Jared had the best time talking with him. It was probably good for both of them.
You figured out how to do the Christmas decor on your blog. Good job-- it looks great! And I'm sorry you've had such a stressful while lately. I think you need a good dose of Becca to feel better. ;) Call me, and we'll visit! I love you!!!
I am glad things went well, kids in the hospital is just not a fun time! Let us know if we can do anything for you. Our thoughts and prayers are with you.
Hey I am glad to see you around again. It sounds like you have had a bit of a rough month :) I cannot imagine trying to keep Kaybri entertained in the hospital! I love her lego tower :) I hope that they might be able to get some anwers form the eeg. Kaybri and Paxton are both getting so big! The are absolutly adorable! I hope your family gets felling better so you can get to that christmas tree!
1. I love the pic of Paxton with his cousin. You have the cutest kids!
2. That rocket is enormous. Did it really fly?
3. I am glad other people enjoy the smell of christmas tree's (Becca doesn't cause it reminds her of being sick and pregnant last year)
4. Merry Christmas!
Busy Busy Busy!!! I hope everyone in your family is feeling much better! I hope Kaybri is doing well! Have an amazing Christmas!!
Wow, so I thought we had it bad with Morgan being in the hospital, but this is something you guys are going through on a regular basis. Now that we have gone through something like that, it just makes me feel even more sorry for you guys and Kaybri! That poor little girl. I hope you can get all this stuff figured out soon!
On a lighter note, we saw Cory and Dawn last night and they were telling us that Justin is interviewing for a job down here! Awesome! If you get it that would be so fun to have you near again!!! And heck, me and Josh still have some lots left where we are building, so you can buy one from us and we can be neighbors! LOL! :o) Good luck with it though...we ar pulling for you!
I hope you didn't get sick too!
Wow, that is quite the hospital stay, you really handle things well, glad that you made it home for Christmas and I hope you had a great Christmas.
Let us know when you get some new about the seizures. I hope all you went through helped a ton. Hope Christmas was good. Love ya!
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